The Meltdown & other happenings

We don’t have too many meltdowns with Matt any more but there are times that they do happen.  Usually, there is no warning and no real reasoning.  We had one of those today.

I kept smelling something and I soon realized that it was Matt.  The meltdown started when I went to check his undies.  I could tell it was an accident because it wasn’t bad.  He got upset no matter how much I tried to reassure him.  He was not going to listen.  I finally got him to the bathroom.  I’m sure it could have been on America’s Funniest Videos.  This 5’0″ tall Mom trying to coax her 4’2 1/2″ tall, 11 yr old son to go to the bathroom and change his poopy underwear. 

I got his clothes off but made the horrible mistake of not taking off the socks and shoes first.  How dare I make such an oversight.  He made sure to take them off and fling the socks at me.  It was then that I shut the bathroom door and let him throw his fit.  After him realizing that no one was paying attention to his fit anymore he finally got over it.  I was able to go in and get him washed up and redressed.  The meltdown only took about 20 minutes.  Just as I got the last shoe on, his Granna came and picked him up for his visitation weekend.  Luckily, he wasn’t too mad.  I at least got a hug out of him before he left.  He’ll come home on Monday afternoon.

Rachel’s dad called back and changed his mind.  He will be getting her this weekend, after all.  She’ll go tomorrow morning.  She is feeling much better.  I still want to strangle her father but obviously I won’t say a word.  Telling him that he made her cry, when he asked, seemed to be enough.

I’m feeling a bit better but still really weak.  My throat doesn’t hurt but it’s real itchy.  My dad is having a huge fish fry on Sunday so I’m just hoping that I can be up to doing that.

I took my cat in to get fixed this morning.  I get her back in the morning.  I miss her so stinking much.  It’s amazing how much you miss something that likes to annoy the heck out of you…lol. X   

Don’t Break a FX Girls Heart

I’ve heard so many times over the past 11 years of dealing with fragile X children that girls are easier.  I have a boy and a girl with fragile x syndrome.  I think Matthew is so much easier than Rachel because Matt is clueless.  He doesn’t care if we are at war or if the dog dies.  Rachel cares and I think the hurt is so much deeper than it is for “normal” children.  I see her and and her friends deal with some of the same issues and I see Rachel having a harder time coping and understanding.  And it makes my heart bleed for her.

This morning she was disappointed by her dad.  It was not a new thing for her.  It’s been happening often for the past 3 years.  By now most children would be hardened and let it roll right off their backs.  But Rachel cried as if it was the very first time that her daddy had ever hurt her.  All I can do is talk to her and hold her and hope she doesn’t see the tears welling up in my eyes from seeing her hurt.  My husband is usually the one who can get her to smile and give her the fatherly love she is desiring at that moment. 

I know this is only the start of heart break for her.  Soon there will be boys in the picture.  I don’t even want to think about how I’m going to handle those moments.  So if you know, or love, a person with FXS keep your promises and don’t break their heart. Because behind every broken hearted soul is a momma that just might be knocking on your door!  X