Archive for June 5th, 2007

Noodles, fingers and more

This is kind of a continuation to all the stuff that was going on in my odds and ends post.

I picked up Matt last night from daycare.  He was happily playing in the dirt at the daycare.  I told him to hurry up because we were going to go to the store to get him some noodles.  He tells me, “What noodles?!”  I explained to him they were the ones at the store I told him that I’d buy him.  So he asks me, “Are you off work?”  I guess he just couldn’t believe it was noodle time.  Needless to say we had noodles for dinner.  I mentioned in a past post that Matt loves to copy Kevin in telling me thank you for dinner.  Well, after dinner last night I counted about 12 thank you’s from Matt.  He was soo cute.

Rachel cracked me up this morning.  My daughter has extremely thick, long hair.  And it’s different textures.  Some is straight, some is wavy and some is very kinky.  It’s a nightmare to brush out.  I went in her room and asked her if she wanted help with it.  She backed away and told me, “No I don’t need you to touch me.”  I got my sad face on and told her, “Fine.”  She came running to me and told me, “I’ll always need you to give me hugs and stuff, Mom.  I just don’t want you near my hair.”  lol

I found out that Kevins back is hurting him because he stopped taking one of his meds.  He didn’t like the side effects.  Lets just say…he is now taking that pill again.

The auditor being here at work is going okay.  My supervisor did come in once and ask if I thought we’d get fired if we put him on a hit list.  I told her if push comes to shove, ya gotta do, what ya gotta do!!

And I get the bad mom award this week.  I managed to roll Matt’s fingers up in the window…again.  I sat him where I could see him so I would know if they were in the window.  And what did I do…hit the buttons and never looked back until they were up.  He was just a jabbering away with his hand hanging from the window.  I freaked out and rolled it down.  He was fine but I wanted to beat my head into the steering wheel for being so dumb.

BTW….Matt was actually excited about going to daycare this morning.  And he didn’t get upset the Rachel was going somewhere else.  I think the transition period is over!!  :)

1 comment June 5, 2007

Right on Target

Maybe it’s the Zoloft.  Maybe it’s the gorgeous summer weather.  Or maybe it’s God letting me know that I’m fine.  But this morning on my commute it dawned on me that the events in my life since I turned 18 all fit into this nice appropriate pattern.  It’s not the pattern that most 18 year olds strive for, or their parents approve of, but every event and detail had a positive purpose.

My adulthood kind of started out different than most.  I didn’t have my parents to guide me to the next step.  I had a team of social workers, teen advisors, a lawyer and a judge and I think a counselor.  I was a ward of the state and they were my family.  They didn’t tell me what to do but they had to have it on a piece of paper what I wanted to do.  I don’t remember what I said I was going to do.  I just kind of made it up to appease them.  I was engaged at 17 and all I wanted to do was be a wife and mother.  (I did get adopted by a foster family I was very close too when I was an adult)

I gave birth to Matt almost a year after I turned 18.  He was so sweet and cute.  He cried a lot but he was still a good baby.  The following February we learned he had a genetic condition, fragile X syndrome, as well as some other issues.  His dad left that same day.  That time alone with my son was the best thing that happened for us.  He changed me in so many ways.  I learned, and matured, more from my son than I could ever had if I had gone off to college.  I think God knew that.  I think God also knew that with the fragile X syndrome I was at risk of having POF and if I didn’t have my children young I may never get to have children of my own.

Rachel showed up two years after Matt’s diagnosis.  She bore the same diagnosis as he did.  Happy with my boy and girl, but unhappy having struck out twice with fragile X, I had a tubal ligation done.  I stayed home with my kids until Rachel started special preschool.   It was so hard for me to be home alone that I got a job with our church while she was in school.  It was good timing because Rachel’s dad got in a semi-truck accident (he was driving) and it changed him and our lives forever.  When Rachel started kindergarten I went full time at the church and started college so I could make enough money to support our family.  Her dad couldn’t hold onto a job after the accident and his temperament had totally changed.  He was a different man.  He left not long after that though he is an intricate part of Rachel’s life.

At the same time my ex left my current husband’s wife also left.  We both prayed for the same qualities in a spouse.  We found each other 6 months later.

All the things I hoped to have when I was 30 I have.  I have a fantastic husband.  I have 4 beautiful children (though I didn’t birth to 2 of them…lol).  I have a good job (though at times I’d love to do something more rewarding than banking!).  I have a cute little house in a fantastic neighborhood.  And right before I turn 31 I’ll have my degree.  I’m right on target and it was only by my strong will and faith that got me here.  :)

3 comments June 5, 2007


Autism & Fragile X

C’est Moi


Overly happy, married, working mom to 4 kiddos. This is our journey while working with fragile x syndrome.

Who are these people?!

all names changed to protect our family
  • Kevin ~ dad
  • Beth ~ mom & fragile X carrier
  • Lauren ~ 17 & in 12th grade
  • Austin ~ 14 & in 9th grade
  • Matthew ~ 13, in 7th grade, has full fragile x mutation, and autistic tendencies
  • Rachel ~ 10, in 5th grade, has full fragile x mutation, and autistic tendencies
  • Theresa~ Beth's best friend since 6th grade & her biggest supporter

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