Not to shabby

August 2, 2007

…as my dad would tell me.  This day is going okay.  My hubby will be home around 10 tonight. 

But before he gets home Rachel will be going with her Nana on a countrywide trip.  She will be flying to Wisconsin for her half-sisters cheerleading national championship.  Then when that is over they will be flying to Florida to hang out at DisneyWorld.  I’m a bit nervous having my 8 year old fragile X daughter flying around the country but I know that her Nana will take care of her.  I’ve tried to prep Rachel for the trip as well as I can and I’m praying that she doesn’t get overwhelmed.  I gotta let go of her hand someday…I guess this is the day.

Lauren stayed the night last night with Grandma J.  Lauren’s cousin from Washington is visiting so they were catching up.  I noticed that as soon as Lauren was gone, Austin’s mood lifted considerably.  I think that there is something to that but he won’t say what.  Austin was quite proud to be the man of the house.  Usually he shuts himself in his room but he hung out with us girls until we fell asleep.  Then he went to bed himself.  Too cute….and so mature!

Rachel’s mood was also considerably better but she had the confirmation of her vacation with the “other family”, so that was probably it.

Work is still quite stressful but at least the weekend is close at hand.

Though I haven’t worked out the kinks of Matthews SSI, I have worked on getting him on my work health insurance.  They will put both him and Rachel on now instead of waiting till the beginning of the year.  Thank you Lord!!  Seriously!

I confirmed with Kevin that we are going to do a massive clean up job on Lauren & Rachel’s room this weekend.  We don’t ever use the living room so we are going to make half of it into Rachel’s bedroom.  Lauren is a pack rat and Rachel is a neat freak.  Plus there is the 7 year age difference and a huge personality difference.  They are just majorly butting heads.  We thought about just buying a bigger house but the ones we could afford are in a different town.  We love the town, and we work in it, but it means changing the kids schools.  The less change in our home the better.  So Rachel gets the living room.  She is quite happy about the idea.  The first thing she told me was that her room would be spotless…lol.  And it will be.  But the upheaval would be too much for her so it is better to do it while she is on vacation.

So that is us :)      

  

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Autism & Fragile X

C’est Moi


Overly happy, married, working mom to 4 kiddos. This is our journey while working with fragile x syndrome.

Who are these people?!

all names changed to protect our family
  • Kevin ~ dad
  • Beth ~ mom & fragile X carrier
  • Lauren ~ 17 & in 12th grade
  • Austin ~ 14 & in 9th grade
  • Matthew ~ 13, in 7th grade, has full fragile x mutation, and autistic tendencies
  • Rachel ~ 10, in 5th grade, has full fragile x mutation, and autistic tendencies
  • Theresa~ Beth's best friend since 6th grade & her biggest supporter

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