Archive for November 14th, 2007

Advocacy Action Alert

Bush vetoed the bill….are we at all surprised. 

Nothing like supporting a war that does nothing for us instead of helping to fund something that does.

Below is what can be done to help override the veto.  This affects all of us…fragile X families or not.  It’s a simple form and only takes about 10 minutes or less.  Please help to get this overridden and put Bush in his place…as our leader and voice, not our dictator.

Advocacy Action Alert

URGENT ADVOCACY ACTION ALERT

 

President Carries Out Veto Threat

Please Contact Your Members of Congress

And Ask Them To Override

 

November 14, 2007

 

From:   NFXF Washington Team

 

To:       All NFXF Advocates

 

Dear Advocates:

 

The beginning of November brought with it agreement by House and Senate leadership on federal health funding levels for the 2008 fiscal year. As we reported last week, the House and Senate passed the bill which contained this funding. We had fantastic Fragile X results: almost all of the directive language we requested to increase research funding by the NIH was included in the bill.

In addition, $1,860,000 was included for the CDC Fragile X Public Health Initiative – more than DOUBLE the current funding level of the program and more than $900,000 above the level included by the House of Representatives!

 

Regrettably, yesterday the President carried out his promise to veto this bill because it exceeded his requests.

 

Please take just a few minutes to contact your Members of Congress TODAY and urge them to override the veto. This is the most important thing you can do for Fragile X funding right now. The Fragile X funding in this bill would not be possible without all the hard work you, our advocates, put into reaching out to your Members of Congress over the last ten months. Help us to maintain that funding today by encouraging your Members to override this veto.

 

We are at a critical point in the appropriations process, and just a few minutes of your time will make a big difference. Thank you again for all your advocacy efforts. Your generous donations of your time, energy, dedication and resources are significant to our success.

CLICK HERE TO WRITE TO YOUR SENATORS AND REPRESENTATIVE

Please do this now. It will only take a minute. Don’t assume others will carry the load.

 

Thank you.

Your National Fragile X Foundation Washington Team

 

Everyone can participate-Forward this email and ask friends and family who have an interest in FX to ask their Members of Congress to override this veto as well…The more our voices are heard the better

Quick Links

Membership

DONATE ONLINE

Quick Links

What is Fragile X?

Fragile X Clinics

This is the most important Action Alert so far this year. The override vote could take place any day so please act today. The link provided will take you to a letter that you can personalize and send. The entire process from start to finish will only take a minute or two.

CLICK HERE TO WRITE TO YOUR MEMBERS OF CONGRESS

3 comments November 14, 2007


Autism & Fragile X

C’est Moi


Overly happy, married, working mom to 4 kiddos. This is our journey while working with fragile x syndrome.

Who are these people?!

all names changed to protect our family
  • Kevin ~ dad
  • Beth ~ mom & fragile X carrier
  • Lauren ~ 17 & in 12th grade
  • Austin ~ 14 & in 9th grade
  • Matthew ~ 13, in 7th grade, has full fragile x mutation, and autistic tendencies
  • Rachel ~ 10, in 5th grade, has full fragile x mutation, and autistic tendencies
  • Theresa~ Beth's best friend since 6th grade & her biggest supporter

wanna email me directly?

Be nice or I'll spam you ;-)

Click Here to Email

Fragile X Webring

Fragile X Webring
Previous | Home | Join | Random | Next

Check out Past Posts!

November 2007
S M T W T F S
« Oct   Dec »
 123
45678910
11121314151617
18192021222324
252627282930  

Wanna see every post I’ve ever written or start at the beginning…

Taggage

I've been encountered on

  • 99,147 occasions.

Family blogs

For more information:

People with a FXS link:

Watch videos at Vodpod and other videos from this collection.
r-word.org

what you've been saying

ME on OMG she has BMG!!
Cindy on Catch-22
fragilemom on WW: The Original Bus = Short…
fragilemom on My favorite season has ar…
Jana on Bye Bye FXSmom
Jennifer on Bye Bye FXSmom
Umma on Bye Bye FXSmom
Russ on Bye Bye FXSmom