Archive for January 11th, 2008

Suffer?

There is a guy, Gregg Harper, running for Congress in Mississippi.  He has an 18 year old son with fragile X syndrome.  I was reading through a little news snippet about him and ran across this line:

Because his 18-year-old son suffers from Fragile X Syndrome, a genetic developmental disability, Harper said he has a special interest in children with special needs and sometimes hires special needs children to work at this law firm after school.

When I look at my babies with FXS, the only one that I see suffering are those who inadvertently pushed them to the curb, because they are missing out on some fantastic and fun children.  My babies are not suffering in any way. 

This may be one of those politically correct way of phrasing things, huh?

What do you all think?

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8 comments January 11, 2008


Autism & Fragile X

C’est Moi


Overly happy, married, working mom to 4 kiddos. This is our journey while working with fragile x syndrome.

Who are these people?!

all names changed to protect our family
  • Kevin ~ dad
  • Beth ~ mom & fragile X carrier
  • Lauren ~ 17 & in 12th grade
  • Austin ~ 14 & in 9th grade
  • Matthew ~ 13, in 7th grade, has full fragile x mutation, and autistic tendencies
  • Rachel ~ 10, in 5th grade, has full fragile x mutation, and autistic tendencies
  • Theresa~ Beth's best friend since 6th grade & her biggest supporter

wanna email me directly?

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