Fragile X Webring

February 11, 2008

I found a new fragile X blog, Basically FX, yesterday.  The blog owner decided to start a Fragile X webring.

For a definition of a webring you can check out wikipedia at this link.  My definition is that it is like a charm bracelet.  The charms are like our blogs: each individual and unique, but attached to one bracelet (or topic).  

So if you have a blog that deals with fragile X syndrome, I invite you to join this webring.  It’s free and it will link up all of us families who deal with fragile X in ourselves, our kids, our families, or whatever. 

There are two ways to join:

  1. Click on this link and fill out the fields.  You will receive an email confirmation and a link to the html for your website.
  2. Or I have the webring box (I’m sure there is a fancier name for it but I’m on painkillers, guys) in the widgets on right.  Click the middle link that says Join and it will direct you the form to fill out.

I think there is autism and autism spectrum webrings out there too.  I haven’t looked into it, and some of you autie parents probably are already participating in them.  If you are a parent involved in one of those webrings please put a link in the comments so others can look into it too.  I don’t want anyone to feel left out :)

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4 Comments Add your own

  • 1. Umma  |  February 11, 2008 at 12:24 pm

    Wow! You have a fantastic way with words…even on painkillers. I absolutely love your analogy to a charm bracelet. Perfect!

    Thanks for sharing the word with folks I hope the webring makes it a lot easier for people to find each other.

    lol…thanks. I hope it will make it easier too. It was a fantastic idea that you had.

  • 2. Marla  |  February 12, 2008 at 2:09 pm

    Sounds great! I hope it provides great support. Thanks for sharing.

  • 3. Tiffany Wright  |  February 14, 2008 at 4:36 pm

    How do I add that little thing like you have onto my blog so that people can see it there too and join if they want to? I want that!!!! LOL! Help! I’m a blogging newbie and I don’t know what to do! Thanks!

    I emailed you privately with answers to all your questions :)

  • 4. sueblimely  |  February 15, 2008 at 8:40 pm

    Thanks for letting us know about this. I am going to join up Fragile X Online. http://fragilexonline.com I have just published a post there about Fragile X blogs with links.

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Autism & Fragile X

C’est Moi


Overly happy, married, working mom to 4 kiddos. This is our journey while working with fragile x syndrome.

Who are these people?!

all names changed to protect our family
  • Kevin ~ dad
  • Beth ~ mom & fragile X carrier
  • Lauren ~ 17 & in 12th grade
  • Austin ~ 14 & in 9th grade
  • Matthew ~ 13, in 7th grade, has full fragile x mutation, and autistic tendencies
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