Archive for February 21st, 2008

Brain Fart ~ Memories

mom.gifAs I was laying in bed this morning, waiting and praying for the pain meds to hit, I had a wonderful brain fart: a new topic for my blog.  FX Memories.  I have so many memories over the last decade related to my kiddos development and behavior.  Some of them could prove to be helpful, inspirational, or at the very least funny.  Therefore, I’m declaring Thursdays as FX Memories Day on my blog.  Not a lot seems to happens on Thursdays in my life so it seemed like a good day.  Though I’m sure I just totally jinxed that, huh.

It is really hard to pick which one I want to share first.  I guess I will start at the very beginning before I knew what fragile X was. 

The Day Matty Was Born

I will never forget the anguish I felt when Matt was born.  I thought he was dead.  The doctor told me that I was all done.  I hadn’t experienced the immense pain that I anticipated so I thought he was joking.  Plus there wasn’t that little baby cry that I expected.  I was not amused and told him as such.  He pointed over to the table where the nurses were working on him.  Matty looked like he was covered in cottage cheese.  Right about the time I glanced over the head nurse starting berating the doctor.  The other nurse handed Matt to his dad and told him to get him straight to the nursery.  I never got to hold Matt when he was first born.  His father wasn’t able to cut the cord.delivery.gif

The doctor had moved my due date back twice.  He said that Matt was too small in his ultrasound pictures so he just couldn’t possibly be due when I said he was.  Ummm….okay.  The “cottage cheese” that was all over my baby was actually infection.  There was little to no amniotic fluid left in the sac when he was born.  The nurse had his dad rush him to the nursery because he had low oxygen levels and a very low body temperature.  In the nursery, they washed all the ewwee’s off of him, hooked him up to some oxygen and put him under the heat lamps.  He was sooo tiny and he looked so pathetic. 

There were little things that should have screamed there was something wrong with him though.  For one, he was always two steps behind in development.  That was the issue with the ultrasound and the due date.  Matty doesn’t feel pain hence the birth canal wasn’t uncomfortable or painful for him.  

I did finally get to hold Matt about 4 hours later.  I had to go to him.  I also started nursing him then too.  He had a very rough time getting into the nursing swing of things.  Once he kind of did he was a really messy eater and that seemed to be all that he did.  Later, I would learn that he didn’t know how to properly suck and that he doesn’t know when he is full.  It would be 8 months later!  But that is another memory.    

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9 comments February 21, 2008


Autism & Fragile X

C’est Moi


Overly happy, married, working mom to 4 kiddos. This is our journey while working with fragile x syndrome.

Who are these people?!

all names changed to protect our family
  • Kevin ~ dad
  • Beth ~ mom & fragile X carrier
  • Lauren ~ 17 & in 12th grade
  • Austin ~ 14 & in 9th grade
  • Matthew ~ 13, in 7th grade, has full fragile x mutation, and autistic tendencies
  • Rachel ~ 10, in 5th grade, has full fragile x mutation, and autistic tendencies
  • Theresa~ Beth's best friend since 6th grade & her biggest supporter

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