Archive for June 10th, 2008

Team FRAXA

This was an important, and quite cool, email that come over the listserv this morning.  Please don’t respond to me.  I have nothing to do with this.  Email Michael directly.

*  *  *  *  *  *  *  *

Hello,

My name is Michael Clift and I have a 12 year old nephew (Matthew) that has Fragile X. I would do anything in the world to help him. Fragile X is the most common cause of inherited mental impairment.

With the help of FRAXA-The Fragile X Research Foundation I have been able to create Team FRAXA. Our members participate in athletic events to benefit more than their own health. With every step they help the FRAXA Research Foundation get closer to a cure.

Team FRAXA has partnered up with the Marine Corp Marathon for our first charity campaign. The running of the 2008 Marine Corp Marathon will be held in Washington D.C. on October 26th, 2008. This year’s race sold out in 5 days. Not to worry!! Team FRAXA has been given 25 race slots and you a chance to run for a great cause in this premiere event.

Team FRAXA member benefits include:

 -Guaranteed entry into one of our featured races!

-Team FRAXA “Racing  For a Cure” Race Shirt!

-Training Program!

-Fundraising Guide!

-A personal fundraising webpage!

 Please visit  www.teamfraxa.org for more information

 or go directly to the event registration site @ http://www.active.com/donate/teamfraxa

Please feel free to contact me directly at mclift@teamfraxa.org

Michael Clift

Team FRAXA Director

10523 Stevens Rd

Dillsboro, IN 47018

p-812-432-5888

www.fraxa.org -for more info on Fragile X

c-513-600-4813

www.teamfraxa.org

1 comment June 10, 2008


Autism & Fragile X

C’est Moi


Overly happy, married, working mom to 4 kiddos. This is our journey while working with fragile x syndrome.

Who are these people?!

all names changed to protect our family
  • Kevin ~ dad
  • Beth ~ mom & fragile X carrier
  • Lauren ~ 17 & in 12th grade
  • Austin ~ 14 & in 9th grade
  • Matthew ~ 13, in 7th grade, has full fragile x mutation, and autistic tendencies
  • Rachel ~ 10, in 5th grade, has full fragile x mutation, and autistic tendencies
  • Theresa~ Beth's best friend since 6th grade & her biggest supporter

wanna email me directly?

Be nice or I'll spam you ;-)

Click Here to Email

Fragile X Webring

Fragile X Webring
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