Archive for August 4th, 2008

Fragile X new video

Here is the news video from the St. Louis news discussing the recent International Fragile X Conference.

more about "Fragile X new video", posted with vodpod

4 comments August 4, 2008

Matt’s In Love

Matty spent his weekend in love with everything.

Saturday morning I was in the kitchen getting his routine breakfast: waffles and milk.  I shook it up a little bit and added a side of sliced strawberries and chocolate mix to his milk.  He repeated over and over (gotta love that perseveration)

I looove strawberries, Mom.
I really love chocolate mix.

Later on in the day he saw the cover of a vampire movie we were gonna watch after he went to bed.

Ewww scary.  I love scary movies.

The kid wouldn’t know a scary movie from Shrek.  He’s never seen one :lol:

Then one of Kevin’s customer’s gave him this gigantic zucchini.  Matty kept calling it an avocado.

Mmmm.  I love avocado’s mom. 

That’s not an avocado Matt.  That’s a zucchini.

I loooove zucchini.

We had that conversation at least 5 times.

I’m not sure why he is feeling so lovey dovey but it will be interesting how long this trend holds and what else he just “looooves” :)

3 comments August 4, 2008


Autism & Fragile X

C’est Moi


Overly happy, married, working mom to 4 kiddos. This is our journey while working with fragile x syndrome.

Who are these people?!

all names changed to protect our family
  • Kevin ~ dad
  • Beth ~ mom & fragile X carrier
  • Lauren ~ 17 & in 12th grade
  • Austin ~ 14 & in 9th grade
  • Matthew ~ 13, in 7th grade, has full fragile x mutation, and autistic tendencies
  • Rachel ~ 10, in 5th grade, has full fragile x mutation, and autistic tendencies
  • Theresa~ Beth's best friend since 6th grade & her biggest supporter

wanna email me directly?

Be nice or I'll spam you ;-)

Click Here to Email

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