Matt came in looking for a kleenex. Huge improvement since he is not a fan of wiping his nose with anything other than his shirt. I didn’t have any in my room. Two minutes later he came in with a brand new set of kleenex. Three boxes all wrapped up in plastic. He tossed them at me and told me, “Here Mom.” I planned to only open one of the boxes but he insisted that all three needed to be opened. All right. So I opened all three. He took the trash and threw it away. Then he took the other two boxes and lined them up in the kitchen window.
We have watched Cars only once! But we have seen Finding Nemo 5 times – 3x’s in his room and twice in mine.
He has managed to take two naps a day! I’ve averaged one for less than 30 minutes a pop.
His fever got so high he actually told me, “I’s hot, Mom.” So I got obsessed with checking for a fever. I don’t know why. It hasn’t officially broke in 4 days! But apparently, he got sick of me checking. I tried to feel his forehead earlier and he shoved me away. “I’m fine, Mom!” Well, okay then.
Not the Throat!!
He now loves seeing his pediatrician. Only took 12 years. He will lean in to listen to the birdy (ear check). He lifts his shirt up so the doc can hear his heart and lungs. He puts his head all the way back so the doc can look in his nose. But, well, um….don’t ask to look inside his mouth. He hears open wide and he gags. And he gags. And gags a little more. And then pukes. So this time he did two gags and decided to bolt. He was close. He had one foot out the door but we rescued him. And we didn’t look at the throat.
R E S P E C T
I am getting a Mr. Manners. Matthew waits until after Kevin & I are done eating and then he takes our dishes to the kitchen sink. Now if I could get him to rinse them
He asks for food…which is good. But he eats a bite or two, making me feel good that he is eating, and then he dumps the rest when I’m not looking. He doesn’t cover it up very well though. I have found food dumped in the sink, thankfully on the garbage disposal side, peeking out of the trash, and laying on his night stand.
Just Lose It
Another trend I found, that I don’t like, came from fever spiking. When his fever spiked, he lost it. He would pee himself and have a massive case of diarrhea. Not enjoyable!
The National Fragile X Foundation has created a new social networking site using Ning. It is geared towards everyone affected by the fragile x gene: carriers, full mutations, those with poi or fxtas, family members, teachers…whoever!! So if you haven’t joined already please come and join us. The more the merrier
Sorry for the delay in posting. Matthew has been really sick since Sunday night so posting has not be at the top of the list . Plus he is zapping all my energy so I don’t even know what to write about at this point. Unless you want to hear about diarrhea and boogies it could be a couple of days.
We hosted a pair of students again last night. We do it once, sometimes twice, a semester. It is for a program called Families as Faculty. Students are enrolled in a class that is along the lines of teaching special needs kids. The college students have to go into a special needs childs home and learn from the family. Hence the title, Families as Faculty. We love doing it.
Our biggest goal is to show the students that a diagnosis doesn’t define a child. We like them to see both Rachel and Matthew so that they can see that even though they have the exact same diagnosis, full mutation fragile x syndrome with autistic tendencies, they are on opposites ends of the MR scale. I hate nothing more than to hear one of the kids’ new teachers tell me, “Yeah I have worked with autism before.” That is all great and fine but have you worked with MY kid before.
We visited for a couple of hours. We let them ask questions and get a feel for what our lives are like. I explained how fragile x genetically worked. I gave them brochures and pamphlets on it to put in their classroom stuff. The kids really enjoy it as well. Last night Matthew actually sorta participated. He would nod his head in agreement when he felt something was important that I was saying.
Clive Ellingson Walker was born February 19 at 10:20 a.m. He was 6 lbs 13 oz & 20 inches long. Clive is after C.S. Lewis. Ellingson is a family name.
Matthew has been on top of things lately. He comes back with answers and quips faster than I can think of them.
Matthew: You’re in Dad’s chair.
Mom: I know. Do you see him anywhere?
Matthew: No. He’s at work!
Months ago his reply would have been, “Who?” or he would have just ignored me. He may have even just repeated his initial statement. It’s neat to see him come back with rational answers.