We hosted a pair of students again last night. We do it once, sometimes twice, a semester. It is for a program called Families as Faculty. Students are enrolled in a class that is along the lines of teaching special needs kids. The college students have to go into a special needs childs home and learn from the family. Hence the title, Families as Faculty. We love doing it.
Our biggest goal is to show the students that a diagnosis doesn’t define a child. We like them to see both Rachel and Matthew so that they can see that even though they have the exact same diagnosis, full mutation fragile x syndrome with autistic tendencies, they are on opposites ends of the MR scale. I hate nothing more than to hear one of the kids’ new teachers tell me, “Yeah I have worked with autism before.” That is all great and fine but have you worked with MY kid before.
We visited for a couple of hours. We let them ask questions and get a feel for what our lives are like. I explained how fragile x genetically worked. I gave them brochures and pamphlets on it to put in their classroom stuff. The kids really enjoy it as well. Last night Matthew actually sorta participated. He would nod his head in agreement when he felt something was important that I was saying.