New Fragile X Community

February 26, 2009

The National Fragile X Foundation has created a new social networking site using Ning.  It is geared towards everyone affected by the fragile x gene: carriers, full mutations, those with poi or fxtas, family members, teachers…whoever!!  So if you haven’t joined already please come and join us.  The more the merrier :)

My Fragile X Community

Entry Filed under: Etc.. Tags: , , , , .

5 Comments Add your own

  • 1. fragileworld  |  February 26, 2009 at 8:25 am

    Hey that sounds great!!!! I’m going to go look it up!!!

  • 2. fragileworld  |  February 26, 2009 at 8:41 am

    oh wow! that really is great!!!! I joined!!!

  • 3. Kristie  |  February 26, 2009 at 1:11 pm

    I signed up. :)

  • 4. Sarah  |  February 26, 2009 at 9:17 pm

    I signed up, too! : )

  • 5. Holly's Mom  |  February 27, 2009 at 4:00 am

    We signed up too.. Very Cool they did this.. now I just have to find everyone and add them as friends.

Leave a Comment

Required

Required, hidden

Some HTML allowed:
<a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <pre> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>

Trackback this post  |  Subscribe to the comments via RSS Feed

Autism & Fragile X

What is Autism?

What is Fragile X?

How are Autism and Fragile X related?

C’est Moi


Overly happy, married, working mom to 4 kiddos. This is our journey while working with fragile x syndrome.

Who are these people?!

all names changed to protect our family
  • Kevin ~ dad
  • Beth ~ mom & fragile X carrier
  • Lauren ~ 17 & in 12th grade
  • Austin ~ 14 & in 9th grade
  • Matthew ~ 13, in 7th grade, has full fragile x mutation, and autistic tendencies
  • Rachel ~ 10, in 5th grade, has full fragile x mutation, and autistic tendencies
  • Theresa~ Beth's best friend since 6th grade & her biggest supporter

wanna email me directly?

Be nice or I'll spam you ;-)

Click Here to Email

Fragile X Webring

Fragile X Webring
Previous | Home | Join | Random | Next

Check out Past Posts!

February 2009
S M T W T F S
« Jan   Mar »
1234567
891011121314
15161718192021
22232425262728

Wanna see every post I’ve ever written or start at the beginning…

Taggage

I've been encountered on

  • 99,162 occasions.

Family blogs

For more information:

People with a FXS link:

Watch videos at Vodpod and other videos from this collection.
r-word.org

what you've been saying

ME on OMG she has BMG!!
Cindy on Catch-22
fragilemom on WW: The Original Bus = Short…
fragilemom on My favorite season has ar…
Jana on Bye Bye FXSmom
Jennifer on Bye Bye FXSmom
Umma on Bye Bye FXSmom
Russ on Bye Bye FXSmom