Wordless Wednesday ~ Blast from the Past

July 8, 2009

matt

Entry Filed under: Etc.. Tags: , , , .

9 Comments Add your own

  • 1. FXSmom  |  July 7, 2009 at 11:02 pm

    If you saw this baby would you think fragile x syndrome? Autism? Well, this is my Matthew as a baby. At this time he was able to sit and roll but he still couldn’t crawl or walk. He was 18 months old.

  • 2. Grampy  |  July 8, 2009 at 6:39 am

    He was so cute. How old is he now?

    He turned 13 in May. And he is still just as adorable. Though I am partial ;)

  • 3. Jennifer  |  July 8, 2009 at 9:27 am

    It’s interesting, because now, being informed, I WOULD think Fragile X with looking at the picture and your brief discription of his abilities. Just like when I look back at my boys…their behaviors, physical features, and abilities screamed Fragile X, but, of course, I had NEVER heard of it before Kyle got diagnosed…at almost 3 years of age. Looking back, he should have diagnosed so much earlier. (partly my fault, partly rude doctor’s fault).

  • 4. FXSmom  |  July 8, 2009 at 11:30 am

    I see it too but like you said it’s only cuz “we know!!”

  • 5. Jennifer  |  July 8, 2009 at 12:46 pm

    Yeah, and more people need to “know!” There’s so much autism awareness now…which is great…but Fragile X is still “not there” yet (key word: yet). When the whole thing about a possible cure for Fragile X came out about a year ago, the mainstream newscasts made it out to be a “cure for autism” with only the slightest mention of Fragile X. Maybe we need Oprah and a celebrity! ;)

  • 6. Kristie  |  July 8, 2009 at 2:17 pm

    I’m dying here. He is the cutest kid! I love, love, LOVE this picture. I could never get pics of my kids taken with out a blur of flapping arms.

  • 7. FXSmom  |  July 8, 2009 at 4:58 pm

    The FX community has tried to hard to get Oprah. When the Benoits died it was put in the spotlight a little bit but not in a good way and not in a way that brought out information. It will happen though. Just in the 12 years that I’ve been working with it, it has come a long long way. Now we have senators with kids who have it, authors who have children/grandchildren with it, actors with brothers with it….it’s getting there. Slowly but surely :) .

  • 8. Jennifer  |  July 8, 2009 at 7:28 pm

    …and how did I forget to mention…he is adorable!!!!!

  • 9. bratnick  |  July 9, 2009 at 2:24 pm

    hehehehehe!!!!! my brother is sooooo cute!!!!!

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Autism & Fragile X

What is Autism?

What is Fragile X?

How are Autism and Fragile X related?

C’est Moi


Overly happy, married, working mom to 4 kiddos. This is our journey while working with fragile x syndrome.

Who are these people?!

all names changed to protect our family
  • Kevin ~ dad
  • Beth ~ mom & fragile X carrier
  • Lauren ~ 17 & in 12th grade
  • Austin ~ 14 & in 9th grade
  • Matthew ~ 13, in 7th grade, has full fragile x mutation, and autistic tendencies
  • Rachel ~ 10, in 5th grade, has full fragile x mutation, and autistic tendencies
  • Theresa~ Beth's best friend since 6th grade & her biggest supporter

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