Don’t you just hate it when you sit down at your blog and …..
I really want to blog. I need to blog. I’m sure up in that noggin’ of mine is something that I need to share. But I can’t find it in there. So I guess I will just chat.
Hey, did you hear that they released new results on fragile x testing. Apparently, awareness efforts are not quite cutting it and children are not getting diagnosed until they are 3 years old or older!! I was part of this test that was done by RTI International. It was really in depth on its questions. I feel really blessed that Matthew was diagnosed at 9 months and Rachel was in utero.
Speaking of awareness….don’t forget that next week fragile x has a momentous occassion. It will be the annual Fragile X Awareness day on July 22. There are a lot of stuff going on across the country like walks, bbq’s, whatever! So check your area and see if anything is going on where you are.